In the new anthology We’ve Got This: Stories by Disabled Parents, parents who identify as Deaf, disabled or chronically ill share the highs and lows of their parenting journeys, and reveal that the greatest obstacles lie in other people’s attitudes. As Rebekah Taussig writes, “Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit – disabled parents exist.” Join the collection’s editor, Eliza Hull, as she speaks with Elly-May Barnes, Brian Edwards and Debra Keenahan  about their contributions to this vital series of rarely heard stories about parenting today.

This is a free event. Bookings are not required, however we recommend that you arrive early to avoid disappointment. 

This event is Auslan interpreted. Contact our ticketing team either by phone on (02) 9256 4200 or via email at ticketing@swf.org.au to book the best sight line. Visit our Accessibility page for more information. 

Elly-May Barnes (Australian)

Elly-May Barnes

Elly-May Barnes is a mother, daughter, sister, musician, sometimes writer and a disability advocate. Elly has spent a lot of her life touring with her musical family (her father is music legend Jimmy Barnes) but has recently slowed down to focus on parenting, her health and her own projects. This year, she’s had a major operation on her legs, spent weeks in painful rehab, could only get around by wheelchair, home-schooled and she has cerebral palsy. You really can’t keep a Barnes down. Elly is currently performing a regular cabaret show at Low 302 in Sydney where she beautifully integrates all those things with love and laughter. Elly is a contributor to We’ve Got This: Stories by Disabled Parents.

Brian Edwards (Australian)

Brian Edwards

Brian Edwards is a proud Wiradjuri man who grew up in the inner west of Sydney. He lost his eyesight at the age of 19 but he didn’t let it affect him. Since losing his vision he has become a proud father. He works in the disability sector as a local area coordinator for the NDIS, where he is passionate about people with disability living life to the fullest and deserving a fair go without encountering the stigma of having a disability in society. He enjoys interaction with others and getting out and having a go. He currently plays for the Australian blind cricket team who he has represented overseas. Brian is a contributor to We’ve Got This: Stories by Disabled Parents.

Debra Keenahan (Australian)

Debra Keenahan

Debra Keenahan is an artist, psychologist and author. She has exhibited ingroup and solo exhibitions and sole and co-authored a book, book chapters and articles. Her work focusses upon the personal and social impacts of disability. Having achondroplasia dwarfism, Debra brings personal insight to understanding the dynamics of interpersonal interactions that include/exclude the visibly different from equitable social relations. Her work employs different mediums to communicate with and engage people on difficult issues, encouraging empathy for the socially excluded. Debra is a contributor to We’ve Got This: Stories by Disabled Parents.

Eliza Hull (Australian)

Eliza Hull

Eliza Hull is a musician, writer and disability advocate based in regional Victoria. She is a proud disabled woman, and the creator and editor of We've Got This: Stories by disabled parents, an anthology featuring writing from 25 Australian parents with disability. Eliza was recently the recipient of the Music Victoria 'Amplify' award, and the Australia Council National Leadership Award. She is also contributed to Growing Up Disabled in Australia and was a recent panelist and performer on ABC TV's Q+A.